EHE Cancer

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EHE Cancer Research

1. EHE is a rare vascular sarcoma that originates in the blood vessels. It can appear almost anywhere in the body, but common sites include the liver, lungs, and bones. The cause of EHE is presently unknown, and no proven treatments exist. EHE tumors can behave differently from one patient to the next, with some being stable for years while others progress quickly. The cancer often metastasizes throughout the body and possesses the ability to transform into an extremely aggressive state with little or no warning. In short, EHE is an unpredictable disease with potentially lethal consequences.

2. There are many future projects that we hope to fund, but currently we are raising funds for a retrospective study. This study will address an issue all EHE patients can relate to: there are no standard treatments for EHE. Funding will address this common issue and give doctors of EHE patients options for evidence-based treatments.

This study is a multi institutional international project. EHE is highly unpredictable and exhibits a broad variety of clinical behaviors, so we must include as many EHE patients as possible to obtain reliable
information.

The math is simple:
-Amount of funding we have for this study = more
-Hospitals will participate = more
-EHE cases will be included = data obtained will be more comprehensive and accurate.

The main goal of the study is to assess:
• Local and systemic treatment modalities applied to EHE across various EHE locations and response to these treatments
• Difference in progression between interventional treatment and “wait and watch” approach
• Clinical and radiological presentations indicative of EHE progression
• Utilized symptoms management and the impact on quality of life

More information or to make a donation go to FightEHE.org